Welcome to my blog!

Welcome to Olivia’s View.

Olivias photo

This blog is my own personal view of donor conception:  the issues, the questions, my reflections on family life, plus comments on media coverage and events: I’m one of the co-founders of DC Network and mother to two sons and a daughter, now adults, conceived both with and without donor help. The views expressed here  are not necessarily those of DC Network.

Meet my family:  Husband Walter, he’s Chair of DC Network and used to be on the board of the HFEA;   eldest son Peter from my first marriage and married to Emily, younger son Will and daughter ‘Zannah…then there’s Milo, a seriously noisy and annoying but ultimately lovable Siamese cat

Posted in Uncategorized | 4 Comments

When the regulators need regulating

More questions raised than answers available this week.  For instance, does the headline in today’s Guardian ‘Chief of NHS regulator quits amid claims it is no longer fit for purpose’ give us a clue as to why we are still awaiting a promised Department of Health consultation on where the functions of the HFEA are best placed?  This was due before Christmas but enquiries to DH officials constantly bring the answer, “sorry postponed, don’t know when…”

Denis Campbell in the Guardian reports that Cynthia Bower, Chief Executive of the Care Quality Commission (CQC) resigned yesterday.  This is said to be a voluntary decision but given the likely ‘damning’ nature of the imminent Public Accounts Committee Report, followed by the report on the Stafford Hospital debacle due in April/May, Bower’s position was likely to have become untenable then anyway.

How can the CQC possibly be considered the right place to take on the complex and multi-layered functions of the HFEA when they cannot seem to get the basic functions of their organisation to a state where patients lives are not put at risk?  Is Cameron going to insist that this beleaguered organisation continues with plans to take on the HFEA in the same blinkered way that he is pressing ahead with NHS ‘reform?’   For those donor conceived people, parents and donors whose details are held in HFEA files, it is vital to know that not only is the information safe but that there is good access to it when those who have a legitimate reason to consult the Register need to do so.  Also that inspections of fertility clinics are carried out competently and consistently by those who understand the family building as well as the scientific functions of these clinics.  We need answers to all these questions very soon.

My eyebrows have also been raised by the announcement – or rather the stealthy appearance on their website – of the members of the working party on Donor Conception and Information (previously called Genes and Parenting) convened by the Nuffield Council on Bio-Ethics.  The inclusion of Sheila Pike, Senior Counsellor from Sheffield and Laura Witjens, a former egg donor, is much welcomed,  but I can’t help wondering where the other stakeholders in the donor conception triangle are?  No parents of donor conceived children and no donor conceived adult.  Lots of academics though.  I understand that at their first meeting on 27th February one of the first questions will be, “Do we have the right people round the table?”.  I will be interested in the answer.

http://www.nuffieldbioethics.org/news/new-working-party-donor-conception-and-information

Posted in Uncategorized | Leave a comment

Donor conception as More rather than Less?

I was talking with ‘Zannah yesterday about her anthropology dissertation, which is exploring the influence of knowing who your ancestors are in relation to personal identity formation.  She has been in correspondence with a number of donor conceived adults about this and noticed that many of them speak in terms of what they feel they are lacking.  However, she had one response that was different and it spoke to her in a very personal way.  This respondent said that at first she too had thought about herself as someone who was ‘missing’ an essential part.  But as time passed, and she joined DCN, she started to feel like part of a community and someone who has something more rather than less than other people.  ’Zannah says she feels like this too.  Growing up inside the DCN has given her a feeling of belonging that gives her confidence and a very strong sense of identity in the world in general.  Identity that is not exclusively to do with being donor conceived but includes it, alongside the many other components of who she is, in a very positive way.   Zannah’s dissertation will report the feelings of a whole range of people conceived with donated gametes and explore them within an anthropological framework and in as objective a way as is ever possible in research, but the more rather than less perspective was an interesting one for her to acknowledge personally.

It makes me think about DCN and the value of being part of a community.  At our national meetings we run three types of group for offspring.  First of all a creche for children up to age 11, where they are cared for and entertained by qualified children’s workers; a children’s group for 8 – 12 year olds to explore their feelings around donor conception in a fun, age-appropriate way.  This is run by child psychologists and experienced children’s group leaders.  And finally a group led by a donor conceived adult for those young people of 13 and over who would like to meet together to chat about topics of mutual interest.  For our national meeting on 17th March 2012 the creche is now full with over 70 children, there are 34 8 – 12 year olds in three separate children’s groups and several 13s and over booked, with the deadline for bookings (parents and DC young people only now) still a week or so away.  All these children and young people are growing up within the DCN community.

Our aim, and strong hope is that, like Zannah and her respondent, children growing up in  Network families will share that sense of belonging and that they will experience their situation as one of having something ‘extra’ rather than a missing part.  This does not mean, however, that parents are not open to listening to what their children have to say as they grow older and develop their own feelings and views about their DC origins, as they inevitably will.  Some DC adults are very keen to stress what they call the ‘brain-washing’ that parents give their children about DC.  ’ Zannah and I talked about this yesterday as well.  I wanted to know if she felt she could talk to me about negative aspects of being donor conceived.  She acknowledged that she had been brought up with very positive feelings about her origins, but said that it would have been very odd if her dad and I had not behaved this way.  Why would we speak negatively about it?  How could this attitude possibly have benefited her and her brother, instilling doubts and fears in their minds.  She feels that the open minded culture she has been raised in has given her plenty of opportunities to talk about difficult feelings, but that, for her, they haven’t been there.  This will not necessarily be so in all families.  ’Zannah’s respondent, referred to above, did not learn of her origins until her early teens and then under difficult circumstances.  She has made a long journey to get to where she is now, including painful conversations with both parents.  Some families may go through rough patches, even needing outside help or therapy to reach a more comfortable place and perhaps never able to feel that they have something extra instead of something missing.  But our community will remain and I am very optimistic about it’s benefits for all family members.

If you are a donor conceived person who would like to contribute to ‘Zannah’s survey on identity, please contact me via this blog or on enquiries@dcnetwork.org and I will pass your details on to her.

Posted in Uncategorized | Tagged , , | 1 Comment

More thoughts on known donors

So how does everyone feel about Trent Arsenault?  This is the man who says he has never had sex but has nevertheless managed to contribute to the birth of fifteen babies, with another three apparently due soon.  He lives in California, advertises his services as a donor on his own website and apparently doesn’t charge his recipients anything for his service.  He works as a consultant in IT, seems to be a bit of a loner and in the article in today’s Sunday Times a would-be mother described him as “Very generous and positive but a bit strange”.  The American Food and Drugs Administration regard him as more than strange.  They seem to consider him “a one man sperm bank” alleging that he “does not provide adequate protections against communicable diseases.”  If he engages in the “recovery, processing, storeage, labeling, packaging or distribution ” of sperm he faces a $1000,000 fine and a year in prison.   Whilst Arsenault waits for the FDA to decide his future he continues to donate, describing himself as a ‘donorsexual’ as the only sexual activity he undertakes is masturbation in order to donate.  I should add that he says he is only too willing to be involved in the lives of the children who come into being as a result of his donation…but without the messy business of actually having to be a parent.

What are we to make of someone like Trent Arsenault?  And apparently there are many more like him, not only in California but here in the UK too.  Men, advertising on the internet, who are willing to help a woman become pregnant, do not seek the traditional anonymity of the sperm donor, do not want to be paid but are not wanting to be parents either.  Some are in it for the ‘sex without ties’, offering NI (natural insemination) as having a higher success rate (it doesn’t) than artificial insemination.  Some seem to be Darwinian egotists wanting to spread their genes as far and widely as they can.  Others are apparently nice guys just wanting to help out (really!!).

The Donor Sibling Registry, most donor conceived adults and the thinking behind UK legislation are all in favour of limiting the number of offspring from each donor.  Partly for reasons of possible consanguinity, but also because it is just plain weird to have huge numbers of half-siblings whom you couldn’t possibly get to know properly.  And what about donors, how would they be able to give time to children in very large numbers of families?  It makes a mockery of any statement about being willing to be involved in the lives of their offspring.  And what are children to make of the stranger their mother met on-line, who contributed to giving them life, is known to their mother(s) but who isn’t around much and possibly seems a little odd when he is.  What is this relationship, what is he to be called?  Surely not dad.

As we know from recent hearings in the High Court in London, having a known donor is not straightforward.  Misunderstandings are all too common and whilst most situations don’t end up in the Court of Appeal, many cause everyday frictions that cannot be good for the lives of anyone involved, particularly the children.  Yet, some donor conceived adults are crying out for situations where they can know both their donor and their dad (or mums, whichever the case may be).  Known donor arrangements can be good for children.  We have families in DC Network who carefully chose a friend who already had a partner and children to be their donor.  But they worked hard at getting things right beforehand.  Specialist Fertility Law Solicitor Natalie Gamble gives some excellent guidelines for anyone contemplating a known donor on her web site http://www.nataliegambleassociates.co.uk/blog/2012/02/10/how-to-avoid-a-known-donor-dispute/      Essentially, it is all about talk/listen, talk/listen….then listen and talk some more.  Iron out potential problems before you start and have a written agreement, even if this is not actually legally binding.

Meeting someone on the internet has NOTHING to do with the type of relationship you need to have in place before entering into any level of known donor arrangement.     Of course would-be parents have to take responsibility for the decisions they make as well.  There would not be Trent Arsenault’s without those who use his services… but I can’t help hoping the FDA get him and set a precedent towards regulation in a country that is shocking in it’s cavalier attitude to donor assisted reproduction.

Posted in Uncategorized | Tagged , , | 4 Comments

Slowly does it…and fingers crossed for Olivia Pratten

It’s always difficult to find the time to read articles so my regular rail journeys to see my beautiful grand-daughter have a dual purpose. In the recent past I have been accompanied by the Guide to Genetics produced by Progress Educational Trust and this week it was The Hastings Centre’s recent report titled Conceived and Deceived: The medical interests of donor conceived individuals by Vardit Ravitsky, Professor of Bio-Ethics at Montreal University http://www.thehastingscenter.org/Publications/HCR/Detail.aspx?id=5678

The United States has long been acknowledged to be the Wild West of assisted reproduction and donor conception in particular.  States have, or have not, legislated individually in these areas and many clinics are simply in the business for the money.  They care little about donors or recipients as people and even less about the children who are the result of their interventions and the families they are to grow up in.  Many destroy all donor medical records before the child turns 18.  One state is bucking the trend.  Effective since July 22nd 2011 the state of Washington requires any donor of sperm or eggs to provide a medical history and identifying information to fertility clinics.  It also allows donor-conceived people to request this information from clinics once they reach the age of eighteen.  Donors may still veto disclosure of their identifying information but offspring now have guaranteed access to non-identifying medical history.

Some commentators have all but dismissed this legislation as useless because of the veto that donors can apply but in a country that has so far steadfastly resisted regulation of any sort in this area, I think it has to be considered a huge step forward.

In his report Ravitsky very sensibly separates out the two main reasons why donor conceived people want information about their donor.  The first is for medical and genetic inheritance reasons.  The second emphasises broader a interest in donors’ personal information which is sometimes seen by  donor conceived people as being helpful in constructing their identity, thus promoting psychological well-being.  The new law in Washington state only addresses the first of these two.  Ravitsky asks the question, “What do we as a society owe donor-conceived individuals in terms of obtaining access to information about genetic origins” but keeps the tempo low and the waters unmuddied by confining himself to the regulatory changes required to address the medical interests of donor conceived individuals, regardless of whether a human right to know one’s genetic origins in acknowledged.  In doing so he opens himself to criticism from those who would say that it is imperative that donor conceived people are told about their origins and also those who believe that donor conception is inevitably damaging.  Although I would count myself amongst those who advocate openness by parents, I find Ravitsky’s approach refreshing in that it takes one issue at a time.  Do read the full report, it is very worthwhile.

Slow…generally seems to be the mood of the moment.  Slow food (yummy casseroles) and slow (eco-friendly) travel are two examples.  I’m usually rather a fast person.  I never walk slowly, I get very impatient with people who speak slowly or who are slow to catch on, but I do believe that we should not rush change in the area of donor conception.  For some people it seems that supporting and encouraging parents to be open with their children,  pushing for the end of donor anonymity, ending payments for donors and promoting contact between donors and offspring at 18 is not enough.  We should be putting the donor’s name on the birth certificate, making sure that children grow up knowing their donor (or ‘parent’ as some people would have it) from day one or, at the most extreme end of the spectrum, abolishing donor conception altogether.  All at the same time as many people, even in the UK, one of the world leaders in legislative change and open culture, are going abroad to avoid identifiable donors, remain ashamed of their infertility and need for a donor and have no intention of telling their children anything about their conception.

Walter and I have always envisaged the future as being one where donors and recipients will be brought together by some sort of not-for-profit agency, whilst doctors are left to work their scientific spells to bring about a pregnancy.  Donor matching and embryology have always seemed like strange bedfellows to me.  When the day comes that neither men nor women feel less of a person for being infertile and are able to handle knowing their donor from the start (as of course the minority who choose known donors do now) it will be accepted that the donor is part of an extended family network.  But with DC really only very recently out of the closet I don’t see this happening in my lifetime (but I am pretty old now!) and I would have thought it would take at least another couple of generations for the culture surrounding gamete donation to catch up with that of adoption and the openness that exists between adoptive and birth parents.  Not that this is always unproblematic.

DC Network has always followed the raising awareness and education route to change.  This won’t suit some donor conceived adults who long for something faster, more radical.  But the slow way takes more people along with it and given that nothing is  going to stop people finding ways to have children, better to tackle one issue at a time.  Washington is showing other States the way in the US in doing this.

DC adult Olivia Pratten is of course leading the way in Canada in attempting to access medical and identifying information about her donor.  In May last year the Supreme Court of British Columbia made a decision in her favour giving the province 15 months to draft new legislation that will not violate Section 15.1 of Canada’s Charter of Rights and Freedoms.  The Court also granted a permanent injunction to prohibit the destruction and disposal of the records of gamete donors. The government of BC appealed the decision and Olivia has been back in Court over the last couple of days.  We await the outcome.  Fingers crossed for for my name sake.

Posted in Uncategorized | Tagged , , | Leave a comment

Straight or gay, responsible parenting is needed

Over the weekend there were articles in both the Guardian and Sunday Times about the Court of Appeal case I highlighted last week regarding the lesbian couple who are in dispute with their ‘donor’ over access to a child created between them (No Legislating for Feelings 7th February ).  Charlie Condou in the Family section of The Guardian uses his column to pour scorn on the apparent lack of thought that went into the agreement that was made between the women concerned and their donor, who according to the Sunday Times, was the gay ex-husband of one of the women.   Condou himself has two children with his gay partner Cameron and Catherine, a single, straight friend whom the men had about two years of discussion with before going ahead with trying to conceive.  As Condou says, “The mothers did not choose an anonymous sperm donor – presumably because they wanted their child to know who his father was – they chose a friend.  A friend who was present at his son’s birth and who has been active in his life.  He is a father, and they, as mothers, don’t have a right to put a limit on how he expresses that, whatever they think they agreed over a bottle of wine.  The child has a father who loves him and wants to be in his life, and the child has every right to that relationship.”  In fact it’s all to do with relationships and really nothing to do with sexuality.

Giles Hattersley in the Sunday Times talks to Alison Burt a solicitor with a family law firm that is seeing an increasing number of difficult and upsetting situations occurring with complicated and un-thought out parenting arrangements.  Sam Dick, head of policy at Stonewall advocates that gay and lesbian parents when seeking someone of the opposite sex to help them have a child, have a long ‘dating’ period where they get to know each other very well before deciding to go ahead.  Condou is adamant that everyone must understand to the letter what the term ‘involvement’ means.   All interviewees agree that  ”Until you have a child you have no idea of the intensity of emotions that rise” and that everyone has to be as prepared as they possibly can be to reconsider arrangements and compromise in the interests of the child.  This being something the women in the current case seem very reluctant to do.

In the meantime the lovely Elizabeth Marquardt asks Do Mothers Matter? in this weekend’s edition of The Atlantic.  I hesitate to mention her as each time I criticise this woman armies of her supporters come out of the woodwork to post their strongly held views about what I have to say.  But I can’t let this pass.

In the article Marquardt starts by proposing that not having a mother was, until recently, widely regarded to be a tragedy.  She then goes on to list ways in which children have historically been separated from their mother and how painful this is for mother and child.  And of course no-one would disagree that any forced separation between parent and child where there has been a bond of love and attachment is something to be avoided at all possible cost.  The argument then moves from one where mother and child are separated to that of egg donation and surrogacy where the parents are gay men and two women, neither of them intending to be mothers, helped them to have a child.  This is a new form of family not in the conventional heterosexual mould – yet another way in which what we mean by family is evolving in the modern world – but lesbian couples have been having children together for a long time now and research shows that their children do very well.  No father present there, unless they have chosen to co-parent.

Is there something special about a woman that makes her more likely to be missed than a man in the family?  I don’t think so.  Men cannot breast feed but they can be equally nurturing and supportive of their children, providing warmth and comfort as well as boundaries and boisterous play.  I’m not dismissing the positive roles that both a father and a mother can play in children’s lives but same sex couples are likely to bring a range of qualities to their parenting that fulfil the needs their children have.  Heterosexual parents who are left on their own with children find that they develop the qualities that the other parent used to bring.  Not having a man or a woman in the house does not necessarily mean that children are missing anything.

Marquardt’s underlying position is always that anything other than a heterosexual couple family with children conceived with their own gametes, is inevitably damaging for children.  Donors are viewed as ‘parents’ who have given up their children to be raised by others and non-genetically connected parents are raising ‘other people’s children’.  In her methodologically flawed study My Daddy’s Name is Donor and quoted in the Atlantic article, she shockingly claims that “Compared to their peers raised by biological parents, sperm-donor conceived persons are more likely to struggle with delinquency, addiction and depression.”  Whilst she has every right to her views on the way in which families are changing, Marquardt has no right to make such statements about donor conceived people in general.

To return to the questions raised at the beginning of this post, it is vital that men and women, straight and gay, understand what they are doing when they bring children into the world.  Adult relationships may be evolving but children’s needs for love, nurture and security do not change.  I believe these needs can be met by same sex as well as heterosexual couples, those who are not genetically connected to a child as well as those who are.  Mums and dads (in same or different sex couples) are those people who are there for their children day in and day out.  Donors are important too but in a different way.  They are not parents who have abandoned their children but contributors of a vital ingredient of life.  They deserve thanks, recognition for their gift and (hopefully) their willingness to make a connection with a young person who needs to know more about them.  Mature responsible parents; mature, responsible donors.  Happy children.

Posted in Uncategorized | Tagged , , , | 8 Comments

DNA is not livingness

Spent a fascinating hour this afternoon in a rather cold cafe on the Gray’s Inn Road talking with Professor Marcus Pembrey.  He is the speaker for the DC Network national members meeting to be held on March 17th and the title of his session is Nature/Nurture: How Much Do We Really Know?   Professor Pembrey is a distinguished geneticist but has never before approached his discipline from the perspective of donor conception and he is clearly intrigued by this.  Before we even reached the cafe door he had brought up the question of the language that is used to refer to all parties in the donor conception triangle…this was when I knew we were in good hands.  Sitting down with a cup of mint tea and Marcus with a mango juice, I gave him some background on the organisation and the situations that people attending the meeting were likely to be in. We discussed  the language question and how the sensitivities of donor conception parents and parents of children with disabilities are strikingly similar and then moved on to some of the questions and issues that are likely to be raised by DCN members.  He listened with interest, scribbled some notes and asked if I could leave him my notes.   But then he started to tell me about about recent findings on responsiveness of genes to environmental influence, how the epigenetic influences on a woman’s eggs are much greater than on sperm and the beginnings of some research on the impact of grandparental nutrition on the health of children two generations hence.  He then moved on to talk about how information about genetics and the impact of genes on disease processes or behaviour has become over-medicalised, almost always given a ‘bad news’ slant, rarely the more positive side of the coin.  And in layman’s terms the positive news does seem to be that nurture has the capacity to massively modify nature.  As Marcus says enigmatically “DNA is not livingness”.  I cannot wait to hear more on 17th March.

I could have done with the train back from Bristol not being 50 minutes late, making it 1am before I was able to climb into my bed back in London, but it was a good trip West yesterday and worth the very long day.  My colleague Chris and I talked with a group of about 12 people, most of whom were planning egg donation. One couple already had a child conceived this way but were frozen with anxiety about beginning to share information with him and others.  I was glad that Chris and I were bringing the experience of sperm donation as there was just one couple present that this situation applied to and they seemed a bit lonely, saying little during the evening.  This ratio very much mirrors our experience at the Network where new members needing egg donation are outnumbering those requiring sperm donation, although in overall numbers, sperm donor families are still in the majority.    On the whole participants at the meeting were very willing to share their experiences and anxieties and if that group represents the people having donor conception treatment in Bristol, then Wendy the counsellor is doing a great job as there was no resistance to openness at all.

One last thing about Bristol.  I can highly recommend the cafe at the Arnolfini art centre on the very picturesque waterfront.  I can’t recommend the art, it was dire, but the shop has some lovely children’s books (I bought two for my grand-daughter) and can’t speak highly enough of the Sicilian eggs (lunch fare) and the coconut cream and lime cake.  Delicious with a mug of Earl Grey tea and a wonderfully warm insulation for the trudge back to the station with my sister in the icy air.   Great day.

Posted in Uncategorized | Tagged , , , | Leave a comment

No legislating for feelings

The Daily Telegraph carries a story today about a Court of Appeal case concerning the future of a boy who was born to a lesbian couple, his conception having been made possible with the help of a close friend, a gay man.  The couple claim that in an agreement, made in a restaurant before the conception, they made it clear to the man that they wished to be the parents of any child born, but that he would be welcome to see the child in their company as s/he grew up.  His position would be neither one of a father nor a traditional sperm donor.  The man, whilst agreeing that the women are the main parents,  is now insisting that he should have the same sort of access and visiting rights as an ‘estranged father’ in a heterosexual couple.  Judgement in the case has been set aside to another time.

This situation almost exactly mirrors that of a lesbian family I recently interviewed for my Mixed Blessings booklet.   An arrangement had been made without signing agreements (although all parties were professionals and should have known better).  Everyone thought they were on the same page but no-one understood or realised prior to conception the powerful feelings that can be aroused in both men and women by the birth of a child.  There is just no legislating for feelings particularly, as in both the current court case and the family in my booklet, the man is around at the time of the birth, holds the baby and attends the christening.  How could he not want more than to be an occasional visitor.  How could it be right for the child not to see him regularly.

Of course written agreements can only state intentions and are not legally binding.  Courts can and do make judgements in the interest of the child that do not reflect the wishes of adults concerned.  But at least signed, written agreements can lay out in cold print what both parties intended and that is a starting point.  But a document can never take feelings into account.  A ‘hands off’ agreement between adults may also be drawn up without realising how a child might feel about a man who is part of his parent’s social circle, is known to have contributed to his creation but who doesn’t seem to want to be a father to him.  Isn’t this going to feel rather dispiriting at least and a rejection at worst?  Surely better that a known donor, where there is no social father, plays an active parenting role, even if the two women are ‘main’ parents.

Not all known donors behave as responsibly as it sounds as if the man in the current case is doing.  In the family I interviewed the man regularly fails to consult with the women about presents he brings to the child, which are often completely inappropriate.  He tried to force the child to call him ‘Daddy’ long before the little boy was ready to do so and has made life very difficult at times for the women.  But they persist because they hope that their son will eventually be pleased that he has his father in his life.

Raising children is one of the most challenging tasks anyone can ever take on.  The feelings on becoming a parent are overwhelming.  It is not surprising that things are going wrong when emotion is not taken into account.  This court case, which no doubt is causing turmoil to the people concerned and their wider families, is a sad failure of adult’s best intentions not taking into account changing feelings and circumstances and the best interests of the child.

http://www.telegraph.co.uk/news/uknews/law-and-order/9064241/Lesbian-parents-betrayed-by-gay-father-demanding-to-see-his-son.html

Posted in Uncategorized | Tagged , | 11 Comments